Friday, March 27, 2009

A Call from my OBGYN



This is such a funny picture I just had to share with everyone for a good laugh. :)

Well now on to what this post is about. lol I got a call from my OGBYN today and she is checking with another specialist about what my treatment should be. My OB had sent me to a specialist and I went to see him. The specialist told me I was in the wrong place. My OB did not like what the specialist told me and does not agree with him at all. LOL I know bucket of yuck, right?? So, now she is checking with a friend of hers (that is a specialist) about my treatment.

I reminded her of my PCOS again and that it was not being treated. She told me there is not much that can be done for it since I am trying to conceive. I then informed her that something needs to be done due to my hormones being all messed up and me not ovulating like I should be.

I ovulate maybe 1 or 2 times a year and my hormones are all out of wack. With all this mess going on, when I do ovulate and get pregnant my body is not ready
to sustain a pregnancy. I informed her of all of this and she is going to get back with me next week on what the specialist told her my best course of treatment should be. I will let everyone know what she tells me. Thank you to the people that have posted comments on my blog of support. The comments truly mean alot to me. :)


Saturday, March 21, 2009

My Day



Well today was another day of waiting. I called my doctors office and left a message letting them know they sent me to the wrong specialist. I have not gotten a call back from her yet and so more waiting.
My little guy is not so little anymore he has gotten so big. My boober is 8 years old now. I can not believe he is 8. I guess I should not have blinked. lol

What am I taking now??
Here is the list:
One Source Prenatal
LD aspirin 81 mg
B6 100 mg
Folic Acid 1600 mcg
B12 500 mcg

I have noticed I feel better now that I have added more Folic Acid and I do not have as many migraine headaches. I have been complaining about the migraines since I was 17 years old and no doctors could tell me anything that would help. Now they are better just from taking more Folic Acid. Go figure! The doctor has still not told me what they are going to do to treat my PCOS and I am not going to stop bugging them until they treat my issues they know I have. So today I did some running around and just spent the day with my son. I thank God for him every time I look at him.

Tuesday, March 17, 2009

My Story

My Son was born on 06/30/2000. That was a great day for us. My son was 6lb and 8 oz, healthy and perfect. My pregnancy was uneventful and went perfect. There was no indication that there was anything wrong with me at all. I had to have a C Section with him due to him being breach. But other than that nothing went wrong. Thank God!! He is 8 years old now and full of energy. He is the light of my life. :)



My husband and I waited before we started trying for our second baby. That is when all my problems started. We tried for a year before we got that positive pregnancy test. We were so very happy and we told everyone I was pregnant and going to have another baby. My son was so excited he kept telling every one his sister was growing in Mommies tummy. He really wants a sister. On 01/02/06 I went to the doctor for my first appointment and my son was so excited. We were there for a sonogram and he was going to get to see the baby. The appointment went fine and we got to see the baby on the sonogram and got pictures and everything. Everything looked fine and the baby had a strong heart beat.

On 01/05/06 I started spotting and I was so worried I got into the car and raced to the hospital. Fear rising from the pit of my tummy. What could be wrong? OMG the baby has to be all right! Please let everything be all right! I was repeating all these things all the way to the hospital. I get to the hospital and get checked in and I inform the nurse of everything that was happening and that I was 11 weeks pregnant. She smiled at me and told me I would be called back soon and sent me back to the waiting area of the hospital. I was freaking out as the time passed in that waiting area. 1 hour, 2 hours, 3 hours later still in the waiting room. I returned to the desk and explained I was pregnant and spotting and I had been waiting for 3 hours. Why was I not being seen immediately. She smiled and told me I would be called next and they were busy with people with the flu. I was screaming in my head "THE FLU!!! THE FLU!!! What about me??? I am PREGNANT and BLEEDING!!!" I was informed since I was still in my first trimester and if I was miscarrying there was nothing they could do but to tell me that was what was happening so please have a seat and wait. I lost it then. I started to cry and could not believe this was happening.

After 4 hours in the waiting room I am called back and put in a room. The doctor comes in and checks my cervix to see if it was closed and it was. He then tells me he is going to order a sonogram and I have to wait more. 2 hours later I was taken to the sono room and the nurse turned the screen away from me to do the sono. She would not let me even look at the monitor. I am freaking out even more and crying. By this time my head feels like it is going to explode. I ask her about the sonogram and she tells me with a smile that the doctor will look at the results and come to my room and discuss it with me. She is not allowed to discuss what she sees in the sonograms. The aid comes in and takes me back to the room they had me in and the waiting continues. After waiting 2 more hours the doctor comes in and tells me "Your baby has died in the womb. You can confirm this with your OBGYN when you see her." Just like that!! Word for word!! I was shocked and completely floored by this. Why tell me this way? Why not tell me with some feeling and kindness!! I had never been treated so bad by a doctor in my life and at the worst possible time. I drove home, crying the whole way.

I got home and curled up in a ball on the bed beside my husband. He asked what was the matter and I told him I lost the baby. He was shocked and got up and called my OBGYN and she wanted to see me as soon as the office opened. I dragged myself into her office were I was happy not even a week earlier and waited to see her. She confirmed the baby did not have a heart beat any longer. Our worst fear had happened. We scheduled a D&C for one week from that day.

On 1-7-06 the bleeding got worse and the pain was like no other I had ever felt in my life. I collapsed on the hall floor from the pain and my husband called 911. I was taken by ambulance to the hospital for an emergency D&C. One of the other OBGYN's from my doctors office was at the hospital and did the D&C.

A month after the D&C I was experiencing pain and went to the hospital. They thought my appendix was rupturing. They got me back within 30 minutes of getting there (not the same hospital I went to before). After checking me out, they said it was not my appendix at all. It was a large cyst in my ovaries that was rupturing. That was what was causing the pain. After this happened I was checked by my OB and told I had PCOS. She wanted to check for endometriosis as well. She told me this was done through laparoscopy. I scheduled the laparoscopy.

On 02/09/2006 I had the laparoscopy done and endometriosis was found. My OB removed all she could but could not get it all. I was told after the surgery that was why I was having so many problems with my periods each month. I was told the first miscarriage was nothing to worry about and to try again. She was sure I would be fine.

On 12/29/2006 after not ovulating for a year I got a positive pregnancy test. I called my OB and she wanted to see me on 01/17/07. I was very nervous and excited all at the same time.

On 01/17/2007 I went in to see my OBGYN and she did a sonogram I was 9 weeks pregnant. But to our heartache there was no heart beat. The baby looked perfect but there was no little heart beat. I closed my eyes and started to cry. It had happened to us again. My husband and my OBGYN cried with me. It was another very sad day for us. We waited a week and did another sonogram on 01/24/07 to see if my notes were wrong on my last cycle date. I knew they were right but I prayed they were wrong. The dates were not wrong, there was still no heart beat. We scheduled the D&C and had it done on 01/29/2007.

01/19/2009 marked my 3rd miscarriage. This one was only 5 weeks and I went through a natural miscarriage with this last pregnancy. Now the testing starts to see why we have been experiencing all these problems. I had a bucket of blood taken for testing and it was found that I have MTHFR. One copy of the C677T mutation and one of the A1298C mutation. But my homocystine levels are normal. It was also found that I have a high plasminogen act inhibitor-1. I was sent to see a specialist that told me I was in the wrong place and I needed a endocranologist instead. So now I am checking with my insurance to get an appointment with one of those.

After everything I have gone through I am still not being treated for my PCOS and now I have two more to add to the list. I will update as I receive more information and share what I am doing about my conditions here. I will be adding more every day as I find things out and as things happen. Pray for me and my family and send baby dust our way.

More to come.

Sunday, March 15, 2009

MTHFR gene

Standing for "Methylene Tetrahydrofolate Reductase", the MTHFR gene is responsible for absorbing folate. (And of course, most readers familiar with trying to conceive have heard of the importance of folate/folic acid. Taking folic acid reduces the risk of having a baby with neural tube defects (which is why most of the grain products on the market are fortified with folate).)

An unexpected miscarriage can shatter dreams. Two or more can be devastating. I have had 3.

Research shows that high homocysteine levels and/or those with the mutation show a higher propensity for thrombosis (blood clots), arteriosclerosis (hardening of arteries), Alzheimer’s, stroke, heart attack, Fibromyalgia, migraines (especially with “Aura” migraines), osteoporotic fractures, bone marrow disorders and for those of child bearing years, it has found to be connected to higher incidences of down’s syndrome, spina bifida, other neural tube defects, trisomy, miscarriage, stillbirth, implantation failure, placental abruption, preeclampsia, higher incidences of autism, amongst others.

For those undergoing fertility treatments, often times the treatment includes Lovenox (low molecular weight heparin) or Heparin (both are anti-coagulants) during the cycle. If you have a history of implantation failure or early miscarriage, it is becoming more acceptable to use the protocol established by the well-respected Reproductive Immunologist Dr. Beers by beginning Lovenox (40mg/once a day) on cycle day 6 and continuing throughout the cycle. If pregnancy is confirmed, this dosage is likely increased (Typically up to 40mg/twice a day, but potentially higher doses are prescribed dependent upon blood work results since homocysteine levels tend to increase with pregnancy) and usage continues throughout your pregnancy. Approximately two to four weeks prior to birth, the patient is converted to Heparin and continues to take an anti-coagulant for another 6 weeks postpartum (typically switched back to Lovenox). During that time, you will typically be directed to take additional Calcium and Vitamin D, as anti-coagulants can cause bone loss (Heparin more so than Lovenox). Some doctors will recommend a bone scan after use is discontinued to ensure there are no bone density issues. While being treated with an anti-coagulant, you will typically be asked to discontinue taking the 81 mg. baby aspirin since the anti-coagulants will replace the need for the thinning property of the Low Dose (LD) aspirin. The FDA has placed Lovenox in the pregnancy category B. Lovenox is not expected to be harmful to an unborn baby. It is not known whether Lovenox passes into breast milk or if it could harm a nursing baby. Do not use Lovenox without telling your doctor if you are breast-feeding a baby. However, many doctors believe it is fine to breastfeed for the 6 weeks postpartum while still receiving Lovenox.
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I will post what my diagnosis is and more information later. For tonight I just wanted to get what my issues are out there so anyone with questions will have them answered by these blog posts. I hope you find this blog informative. I will be updating it very often, relaying information as I find out my treatments and what I am going to have to do to get pregnant and stay that way with a healthy baby.

Thank you for reading,

till my next post :)

Polycystic Ovary Syndrome (PCOS)

What is polycystic ovary syndrome (PCOS)?

Polycystic ovary syndrome is a problem in which a woman’s hormones are out of balance. It can cause problems with your periods and make it difficult to get pregnant. PCOS may also cause unwanted changes in the way you look. If it is not treated, over time it can lead to serious health problems, such as diabetes and heart disease.

Polycystic ovary syndrome (or PCOS) is common, affecting as many as 1 in 15 women. Often the symptoms begin in the teen years. Treatment can help control the symptoms and prevent long-term problems.
What are hormones, and what happens in PCOS?

Hormones are chemical messengers that trigger many different processes, including growth and energy production. Often, the job of one hormone is to signal the release of another hormone.

For reasons that are not well understood, in PCOS the hormones get out of balance. One hormone change triggers another, which changes another. This makes a vicious circle of out-of-balance hormones. For example:

* The sex hormones get out of balance. Normally, the ovaries make a tiny amount of male sex hormones (androgens). In PCOS, they start making slightly more androgens. This may cause you to stop ovulating, get acne, and grow extra facial and body hair.
* The body may have a problem using insulin, called insulin resistance. When the body doesn't use insulin well, blood sugar levels go up. Over time, this increases your chance of getting diabetes.

What are the symptoms?

Symptoms tend to be mild at first. You may have only a few symptoms or a lot of them. The most common symptoms are:

* Acne.
* Weight gain and trouble losing weight.
* Extra hair on the face and body. Often women get thicker and darker facial hair and more hair on the chest, belly, and back.
* Thinning hair on the scalp.
* Irregular periods. Often women with PCOS have fewer than nine periods a year. Some women have no periods. Others have very heavy bleeding.
* Fertility problems. Many women with PCOS have trouble getting pregnant (infertility).
* Depression.

Most women with PCOS grow many small cysts on their ovaries. That is why it is called polycystic ovary syndrome. The cysts are not harmful, but lead to hormone imbalances.
What causes PCOS?

The symptoms of PCOS are caused by changes in hormone levels. There may be one or more causes for the hormone level changes.

PCOS seems to run in families, so your chance of having it is higher if other women in your family have PCOS, irregular periods, or diabetes. PCOS can be passed down from either your mother's or father's side.

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There you have it that is what PCOS is and no I do not have hair on my chest and back. LOL Thought I would have a laugh while I was at it. :) But I will say this issue is not fun and it is hard to find a doctor that will treat you after you are diagnosed.

Endometriosis

Lots of people have asked me what is endometriosis so I wanted to post exactly what it is here for everyone to know what this is and why it is just one of my problems with getting and staying pregnant.


Endometriosis is a painful, chronic disease that affects 5 1/2 million women and girls in the USA and Canada, and millions more worldwide. It occurs when tissue like that which lines the uterus (tissue called the endometrium) is found outside the uterus -- usually in the abdomen on the ovaries, fallopian tubes, and ligaments that support the uterus; the area between the vagina and rectum; the outer surface of the uterus; and the lining of the pelvic cavity. Other sites for these endometrial growths may include the bladder, bowel, vagina, cervix, vulva, and in abdominal surgical scars. Less commonly they are found in the lung, arm, thigh, and other locations.

This misplaced tissue develops into growths or lesions which respond to the menstrual cycle in the same way that the tissue of the uterine lining does: each month the tissue builds up, breaks down, and sheds. Menstrual blood flows from the uterus and out of the body through the vagina, but the blood and tissue shed from endometrial growths has no way of leaving the body. This results in internal bleeding, breakdown of the blood and tissue from the lesions, and inflammation -- and can cause pain, infertility, scar tissue formation, adhesions, and bowel problems.

What are the Symptoms of Endometriosis?

* Pain before and during periods
* Pain with sex
* Infertility
* Fatigue
* Painful urination during periods
* Painful bowel movements during periods
* Other Gastrointestinal upsets such as diarrhea, constipation, nausea.

In addition, many women with endometriosis suffer from:

* Allergies
* Chemical sensitivities
* Frequent yeast infections

What Causes Endometriosis?

The cause of endometriosis is unknown. The retrograde menstruation theory (transtubal migration theory) suggests that during menstruation some of the menstrual tissue backs up through the fallopian tubes, implants in the abdomen, and grows. Some experts believe that all women experience some menstrual tissue backup and that an immune system problem or a hormonal problem allows this tissue to grow in the women who develop endometriosis.

Another theory suggests that endometrial tissue is distributed from the uterus to other parts of the body through the lymph system or through the blood system. A genetic theory suggests that it may be carried in the genes in certain families or that some families may have predisposing factors to endometriosis.

Surgical transplantation has also been cited in many cases where endometriosis is found in abdominal scars, although it has also been found in such scars when accidental implantation seems unlikely.

Another theory suggests that remnants of tissue from when the woman was an embryo may later develop into endometriosis, or that some adult tissues retain the ability they had in the embryo stage to transform reproductive tissue in certain circumstances.

Research by the Endometriosis Association revealed a startling link between dioxin (TCCD) exposure and the development of endometriosis. Dioxin is a toxic chemical byproduct of pesticide manufacturing, bleached pulp and paper products, and medical and municipal waste incineration. The EA discovered a colony of rhesus monkeys that had developed endometriosis after exposure to dioxin. 79% of the monkeys exposed to dioxin developed endometriosis, and, in addition, the more dioxin exposure, the more severe the endo.